Quantifying the Burden of Systemic Sclerosis in Australia: From Data Linkage to Patient Reported Outcomes

Grant number: 1113954 | Funding period: 2016 - 2017

Completed

Abstract

Systemic sclerosis (SSc) is a rare autoimmune disease with the potential to cause significant physical, financial and psychosocial burden on patients, their family members and wider community. The true ‘burden’ of SSc in Australia is unknown. My study aims to quantify this burden of disease and use our results to advocate for appropriate allocation of resources with the ultimate goal of improving patient outcomes and reducing the financial and human costs of this chronic rare disease.

Related publications (6)

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Work productivity in systemic sclerosis, its economic burden and association with health-related quality of life

K Morrisroe, V Sudararajan, W Stevens, J Sahhar, J Zochling, J Roddy, S Proudman, M Nikpour

2018-01-01

Objective. To evaluate work productivity and its economic burden in SSc patients. Methods. Consecutive SSc patients enrolled in th..

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A systematic review of the epidemiology, disease characteristics and management of systemic sclerosis in Australian adults

K Morrisroe, W Stevens, S Proudman, M Nikpour

2017-11-01

Objective: Australia has one of the highest prevalence rates of systemic sclerosis (SSc) worldwide. In order to highlight manageme..

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Survival and quality of life in incident systemic sclerosis-related pulmonary arterial hypertension

K Morrisroe, W Stevens, M Huq, D Prior, J Sahhar, GS Ngian, D Celermajer, J Zochling, S Proudman, M Nikpour, C Hill, S Lester, P Nash, G Ngian, M Rischmueller, J Roddy, G Strickland, V Thakkar, J Walker

2017-06-02

Background: Pulmonary arterial hypertension (PAH) is a leading cause of mortality in systemic sclerosis (SSc). We sought to determ..

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Epidemiology and disease characteristics of systemic sclerosis-related pulmonary arterial hypertension: Results from a real-life screening programme

K Morrisroe, W Stevens, J Sahhar, C Rabusa, M Nikpour, S Proudman, C Hill, S Lester, M Rischmueller, J Walker, P Nash, G Ngian, J Roddy, G Strickland, V Thakkar, J Zochling

2017-03-07

Background: Pulmonary arterial hypertension (PAH) is the leading cause of death in systemic sclerosis (SSc). Annual screening with..

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Risk factors for development of pulmonary arterial hypertension in Australian systemic sclerosis patients: Results from a large multicenter cohort study

K Morrisroe, M Huq, W Stevens, C Rabusa, SM Proudman, M Nikpour

2016-09-27

Background: Pulmonary arterial hypertension (PAH) is the leading cause of mortality in patients with systemic sclerosis (SSc). We ..

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Systemic sclerosis: The need for structured care

K Morrisroe, T Frech, J Schniering, B Maurer, M Nikpour

2016-02-01

Autoimmune connective tissue diseases (CTDs) have a propensity to affect multiple organ systems as well as physical function, qual..

University of Melbourne Researchers